| Participant |
Affiliation |
Media |
| Mathew Abrams |
KnowledgeSpace |
|
| Mariet Allen |
Mayo Clinic, Florida |
Ertekin-Taner lab: Genetics of Alzheimer’s disease and endophenotypes |
| Misha Angrist |
Duke University, Genome Magazine |
“Medicine’s ground state is uncertainty.” – Atul Gawande |
| Meher Antia |
University of Washington |
|
| Pat Arean |
University of Washington |
Bio |
| Bruce Aronow |
Cincinnati Children’s Hospital |
Data Mining from the New PCBC Genomics Expression Atlas |
| Annette Bakker |
Children’s Tumor Foundation |
Bio |
| Katie Baca-Motes |
Scripps Research Institute |
Bio |
| Madeleine Ball |
Open Humans |
Opening up Access- ‘Open Humans’ |
| Douglas Bassett |
Celgene |
|
| Trevor Bedford |
Fred Hutchinson Cancer Center |
Bedford Lab |
| Tim Behrens |
Genentech |
Bio |
| Heidi Berthoud |
Kaiser Permanente Washington Health Research Institute |
Scientist and patient advocate |
| Jeremy Block |
Venture Catalyst |
Digital Health Regulations & the IRB |
| Jason Bobe |
Icahn School of Medicine at Mount Sinai |
Quantified Self Public Health Symposium |
| Jasper Bovenberg |
Legal Pathways Institute for Health and Bio-Law |
Bio |
| Elizabeth Bruce |
Microsoft |
|
| Diana Buist |
Kaiser Permanente Washington Health Research Institute |
Bio |
| Katrina Buttons-Simmons |
|
|
| Marc Buyse |
IDDI & Cluepoints |
PharmaVoice profile |
| Bruce Caron |
The Federation of Earth Science Information Partners |
Virtual Democracy |
| Yvonne Chan |
The Federation of Earth Science Information Partners |
Asthma Mobile Health Study |
| Bao Kham Chao |
|
|
| Christy Collins |
M-CM Network |
Bio |
| David Collier |
Eli Lilly |
|
| April Clyburne-Sherin |
Sense About Science USA & OOO Canada |
Building the Grassroots of Open Clinical Research with AllTrials USA |
| Jennifer Couch |
National Cancer Institute |
|
| Frank Curci |
Ater Wynne |
Bio |
| Nadine Defranoux |
Parker Institute for Cancer Immunotherapy |
|
| Nicole Deflaux |
Verily |
|
| Megan Deichler |
Helmsley Foundation |
Bio |
| Hany Demian |
FDA |
|
| Andrew Dervan |
Celgene |
|
| Keith Elliston |
TransMart Foundation |
Bio |
| Deborah Estrin |
Cornell Tech |
Research Activities |
| Dorothy Farrar Edwards |
University of Wisconsin |
Profile |
| Aled Edwards |
SGC |
Open Science: SGC |
| David Ernst |
University of Minnesota |
Bio |
| Ashley Farley |
Gates Foundation |
|
| Michael Ferdig |
University of Notre Dame |
|
| Kadija Ferryman |
Data & Society Research Institute |
|
| Magnus Fontes |
The Institut Pasteur |
Bio |
| Fredricka Foster |
Artist and Curator |
Gallery |
| Stephen Friend |
Sage Bionetworks |
Ted Talk: The Hunt for “Unexpected Genetic Heroes” |
| Gilles Frydman |
ACOR |
Stanford Medicine |
| Dan Gallahan |
National Cancer Institute |
|
| Rachel Gary |
|
|
| William Faucett |
Geisinger |
|
| Amel Ghoulia |
Institut Pasteur de Tunis, H3ABionet |
Hacking anti-malarial drug resistance |
| Sarah Greene |
Rapid Science |
Rapid Science: Discovery Through Collaboration |
| Bastian Greshake |
“openSNP” |
Opening Up a Million Genomes |
| Melissa Haendel |
Oregon Health Sciences University |
Bio |
| Jennifer Hall |
American Heart Association |
|
| Lee Hartwell |
Arizona State University |
Bio |
| Andrea Hartzler |
Kaiser Permanente Washington Health Research Institute |
Bio |
| Laura Heiser |
Oregon Health Sciences University |
Microenvironmental Perturbagen LINCS Center |
| Eric Hekler |
Arizona State University |
Agile Science |
| Aaron Hendelman |
Wilson Sonsini Goodrich & Rosati |
|
| Andrew Hessel |
Autodesk, Inc. |
Hacking Cancer |
| Timothy Hohman |
Vanderbilt |
Resilience Initiative |
| Alan Honick |
Prosocial World |
|
| Elizabeth Horn |
Horn Productions |
|
| Yong Huang |
|
Text2Knowledge |
| Kathy Hudson |
|
|
| Andrew Hufton |
Nature Research |
Scientific Data |
| Shannon Hughes |
Nationlal Cancer Institute |
Bio |
| Fatemeh Jahanbakhsh |
Institut Pasteur |
|
| Leila Jamal |
Johns Hopkins Berman Institute of Bioethics |
Bio |
| Wang Jun |
iCarbonX |
|
| Rima Kaddurah-Daouk |
Duke University |
Bio |
| Peter Kapitein |
Inspire2Live |
Bio |
| Chris Karp |
Gates Foundation |
Bio |
| Nancy Kass |
JHU Berman Institute |
Bio |
| Stephen Keating |
MIT |
The Patient is In: How Curiosity Saved His Life |
| Steve Kern |
Quantitative Sciences, Bill & Melinda Gates Foundation |
Data Sharing and Inductive Learning for Global Health Advancement |
| Jonathan Kiehnau |
Growing Vine Street |
Bio |
| Justin Kiggins |
Allen Institute for Brain Science |
Bio |
| Predrag Klasnja |
Kaiser Permanente Washington Health Research Institute |
Bio |
| Juergen Klenk |
Deloitte |
Conquering Cancer- XPRIZE |
| Chitra Krishnan |
Transverse Myelitis Association |
Bio |
| Matthew Krey |
|
|
| Nastaran Kuhn |
National Cancer Institute |
Bio |
| Helena Ledmyr |
INCF |
Why neuroscience needs neuroinformatics: a Q&A with Helena Ledmyr |
| Jason Lerner |
|
|
| Dana Lewis |
OpenAPS |
|
| Ken Mandl |
Computational Health Informatics Program, Boston Children’s Hospital, Harvard University |
Dr. Mandl’s Research Program |
| Gaell Mainguy |
Centre de Recherches Interdisciplinaires |
S.A.P.I.EN.S – Sharing Knowledge, Preparing for the Future |
| Parag Mankeekar |
Neeti Solutions |
Bio |
| Mao Mao |
Beijing Genomics Institute |
|
| Frederick “Erick” Matsen |
Fred Hutchinson Cancer Center |
Research |
| Lisa Matthias |
|
|
| Anna McCollister-Slipp |
Scripps Research Institute |
|
| Sean McDonald |
Stanford |
|
| Randy McIntosh |
Rotman Research Institute, at the Baycrest Centre |
Bio |
| Daniel Mietchen |
NIH Data Science Team |
Notes on activities related to the Assembly’s theme |
| Jaykumar Menon |
Centre for International Sustainable Development Law (CISDL) and Open Source Pharma Foundation (OSPF) |
Bio |
| Ryan Merkley |
Creative Commons |
Bio |
| Pablo Meyer |
IBM |
Bio |
| Arikia Millikan |
|
|
| Dusan Misevic |
Center for Research and Interdisciplinarity (CRI) |
Bio |
| Plavi Mittal |
Jain Foundation, Inc. and
In Depth Diagnostics |
Bio |
| Arezoo Movaghar |
University of Wisconsin |
Lifespan Family Research |
| Walt Moyo |
Virtual University of Uganda |
|
| Bernard Munos |
FasterCures (Milken Institute) |
Bio |
| Camille Nebeker |
Scripps Translational Science Institute and UC San Diego |
Connected and Open Research Ethics (CORE) Initiative and Building Research Integrity and Capacity (BRIC) |
| Akpéli Nordor |
Institut Curie |
|
| Thea Norman |
Gates Foundation |
|
| Elaine Nsoesie |
Institute for Health Metrics and Evaluation, University of Washington |
Bio |
| Lucy Odling-Smee |
Nature |
|
| Casey Overby |
Johns Hopkins University |
Bio |
| Ravi Pandya |
Microsoft Genomics |
Bio |
| Eleonore Pauwels |
Wilson Center |
Bio |
| Mark Patterson |
eLife Sciences |
|
| Ben Pierson |
Gates Foundation |
|
| Piarella Peralta |
Inspire2Live |
Bio |
| Adler Perotte |
Columbia University |
Bio |
| Chris Percopo |
Helmsley Foundation |
|
| Suzana Petanceska |
National Institute on Aging |
Alzheimer’s Disease Translational Research |
| Carolyn Petersen |
Mayo Clinic |
|
| Alexander Pico |
Gladstone Institutes |
WikiPathways |
| Heather Piwowar |
Impact Story |
|
| Jason Priem |
Impact Story |
|
| Ernesto Ramirez |
Fitabase |
From Citizen Science to Precision Medicine |
| Allison Randal |
Open Source Initiative |
|
| Gaston Remmers |
HABITUS |
|
| Rachel Rubin |
The Michael J Fox Foundation for Parkinson’s Research |
Incentivize the community to derive actionable conclusions from Parkinson’s Data multi-modal analysis |
| Jane Roskams |
University of British Columbia |
Citizen Neuroscience and BRAIN Big Data Innovation |
| Biliana Rotse |
Novartis |
|
| Nathan Salomonis |
Cincinnati Children’s Hospital |
Biomedical Informatics Researcher Spotlight |
| Nigam Shah |
Stanford University |
Bio |
| Samuel Sennott |
Universal Design Lab, Portland State University |
Assistive technology and augmentative communication intervention research |
| Geetha Senthil |
National Institute of Mental Health |
|
| Fabienne Serriere |
KnitYak |
Algorithmic Knitting on Knitting Machines |
| Joan Severson |
Digital Artefacts |
|
| Lea Shanley |
Gaylord Nelson Institute for Environmental Studies |
|
| Ilona Schelle |
Inspire2live |
Patient Advocacy |
| Nick Shockey |
SPARC |
Bio |
| Tania Simoncelli |
Broad Institute |
Should you be able to patent a human gene? |
| Beth Simone Noveck |
The Governance Lab @ NYU |
Bio |
| Ben Shapiro |
Drugs for Neglected Diseases initiative |
Bio |
| Buster Simpson |
Public Art and Expression |
|
| Ida Sim |
UCSF Clinical and Translational Sciences Institute |
Open source software for using digital health data |
| Dinah Singer |
National Cancer Institute |
Bio |
| Rebecca Singer |
King County Metro |
|
| Geoffrey Siwo |
IBM Research Africa |
|
| Magdalena Skipper |
Altius Institute for Biomedical research |
Innovation in science communication and dissemination |
| Meredith Slota |
Socrata |
|
| Daniel Smith |
BlackThorn Therapeutics |
Bio |
| MacKenzie Smith |
University of California Davis |
Moving scholarly communication towards open/digital |
| Paul Spellman |
Oregon Health & Science University |
Bio |
| Susan Spencer |
Fabricatorz |
Valentina Project |
| Ellan Spero |
MIT |
|
| Tibet Spraque |
Terran Collective |
University collaboration tool. Coming soon! |
| Matthew Spitzer |
Center for Open Science |
An Open Science Framework for Connecting Institutional Research |
| Shawn Sweeney |
American Association for Cancer Research |
AACR Project GENIE |
| Kat Steele |
University of Washington |
Bio |
| Steve Steinhubl |
Scripps Translational Science Institute |
Bio |
| Kari Stoever |
Lieber Institute for Brain Development |
Bio |
| Josh Stuart |
UC Santa Cruz |
Pan-Cancer Research |
| Lynda Stuart |
Gates Foundation |
Bio |
| Susan Tallarico |
King County Metro |
|
| Desney Tan |
Microsoft Research |
Bio |
| Jon Tennant |
Scienceopen, Imperial College London |
Bio |
| Lenny Teytelman |
protocols.io |
Open access repository of life science methods |
| Kaitlin Thaney |
Mozilla Foundation |
Bio |
| Luke Timmerman |
Timmerman Report |
|
| Matthew Todd |
University of Sydney and
Open Source Malaria |
Bio |
| Beverly Torok-Storb |
Fred Hutchinson Cancer Center |
Featured Profile |
| Andrew Trister |
|
|
| Matthew Trunnell |
Fred Hutchinson Cancer Center |
|
| Freyja van den Boom |
Open Knowledge International |
How to enable Text and Data mining |
| Wilbert Van Panhuis |
University of Pittsburgh
Project Tycho |
Bio |
| Laura Van’t Veer |
UC San Francisco |
Bio |
| Christian Vanizette |
MakeSense |
MakeSense / Hold Up Introduction |
| Angela Walker |
Eli Lilly |
|
| Becky Weaver |
St. Baldrick’s |
|
| Dan Webster |
National Cancer Institute |
|
| Dan Weinberger |
Lieber Institute for Brain Development |
Bio |
| Emily Weisberger |
Helmsley Charitable Trust |
Bio |
| Kelsey Wiens |
UnCommon Women |
|
| Courtney Wilkins |
University of Washington |
|
| Gary Wolf |
Quantified Self |
|
| Robert Ziman |
Genentech |
|
